tag:blogger.com,1999:blog-7183951498871799062024-03-05T08:22:29.729-08:00The Jack PotA blog about life and family ... with a little extra chromosome and a whole lot of love!Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.comBlogger173125tag:blogger.com,1999:blog-718395149887179906.post-68793048376510501802013-03-05T14:45:00.002-08:002013-03-05T14:45:19.781-08:00End the Word 3.6.13<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">According to the online Merriam-Webster Dictionary, the adjective form of THE word is:</span></div>
<div style="text-align: center;">
<span style="font-size: large;"></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong><em>retarded (adj)</em></strong>: slow or limited in intellectual or emotional development or academic progress</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">No where there does it say "stupid", "ridiculous", "brainless", "dense", "dumb", "idiotic", "meaningless" or "moronic". <em>So, why do so many people still use the r-word when describing themselves (or others or situations) as such?</em></span></div>
<div style="text-align: center;">
<span style="font-size: large;">My son Jack is developmentally delayed in some areas, but emotionally and socially he is well beyond his typical peers. And, I have known plenty of "academically limited" people without any medical diagnoses in my time, and no one ever called<em> them</em> "retarded." </span></div>
<div style="text-align: center;">
<span style="font-size: large;">The truth about the r-word is that it is <a href="http://www.disabilityscoop.com/2010/10/05/obama-signs-rosas-law/10547/">no longer even accepted</a> as proper medical jargon to describe individuals with cognitive disabilities. And, when you use THAT word in everyday language to describe someone as "ridiculous" or "stupid," most likely you are (1) offending someone around you (like me and my son), and (2) you're in fact making yourself look like the one who is "mindless." The English language is full of plenty other adjectives out there to pick from, people. Ones that are relevant to your situation at hand, and ones that won't make me cringe and want to high five you ... <em>in the face</em>. </span><span style="font-size: large;"><br /></span></div>
<div style="text-align: center;">
<span style="font-size: large;">My son Jack is many things ... </span></div>
<div style="text-align: center;">
<span style="font-size: large;">He is a beautiful 2 and a half year old boy. <br />He is happy. He is healthy. He is funny. <br />He is giggly. He is loving. He is giving. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">He is <strike>stubborn</strike> opinionated. He is smart. And, he is very cute. </span></div>
<div style="text-align: center;">
<span style="font-size: large;"><br /></span></div>
<div style="text-align: center;">
<span style="font-size: large;">What he IS NOT is an "idiot" or a "moron." </span></div>
<div style="text-align: center;">
<span style="font-size: large;">And, HE IS NOT A "RETARD."</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Yes, Jack does have Down syndrome and may have an intellectual disability, ...</span></div>
<div style="text-align: center;">
<span style="font-size: large;"> but he is also the <em>very air I breathe</em>. </span></div>
</div>
<div style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgky423G6LRv-2_YlpQr9EuuOemfVU2KULBa_dXtQeMJA_zoHiBnEy_iC7knfkuOihLl4TGgeIWvlzIlvYS-9sNwNv1MvKDYycC1j40QHbGqzZuUx4Ix1T7-wzOeq7JBfSxjz6D4s9jaAE/s1600/JACK+CUTIE.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" jsa="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgky423G6LRv-2_YlpQr9EuuOemfVU2KULBa_dXtQeMJA_zoHiBnEy_iC7knfkuOihLl4TGgeIWvlzIlvYS-9sNwNv1MvKDYycC1j40QHbGqzZuUx4Ix1T7-wzOeq7JBfSxjz6D4s9jaAE/s320/JACK+CUTIE.jpg" width="238" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">So, when I hear you or someone else say <em>THAT</em> word, it takes the breath right. out. of. me. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Tomorow, March 6, 2013, is this year's Day to <strong>Spread the Word to End the Word</strong>. Please be a fan of RESPECT, and visit </span><a href="http://www.r-word.org/"><span style="font-size: large;">this site</span></a><span style="font-size: large;"> to pledge and support the elimination of the derogatory use of the r-word from everyday speech and promote the acceptance and inclusion of people with intellectual disabilities. I beg you to share the knowledge of this movement with all your friends, families and coworkers as well, in a united effort to end the pain that this one little word can inflict. </span></div>
<div style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHnkKAMFL99RkdMzaNR2N4XLDRvCjT9fJS7z2ijSon4mRC62moJTVTWvGERtUUUN6V7FNFYO0EBQC-rjNIsQDojy1oxvJanniwCIc4plRxNvYun_KdXohhG9FXlMv54Pu3o4W7cvnlEyA/s1600/Spread+the+Word.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="235" jsa="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHnkKAMFL99RkdMzaNR2N4XLDRvCjT9fJS7z2ijSon4mRC62moJTVTWvGERtUUUN6V7FNFYO0EBQC-rjNIsQDojy1oxvJanniwCIc4plRxNvYun_KdXohhG9FXlMv54Pu3o4W7cvnlEyA/s640/Spread+the+Word.jpg" width="640" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Learn it and live it. Like it, and share it on facebook. Email it to friends. Blog about it. Have a private, educational, constructively criticizing (<em>but polite</em>) conversation with a repeat offender.</span></div>
<div style="text-align: center;">
<span style="font-size: large;">Be an adult, and stand up for what is right. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">And for the love ... please just <em>think</em> before you speak.</span></div>
<div style="text-align: center;">
<br /> </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwnG3dzeEplsWMzd-9Rt5WqA04iJVF0V-0qjuL00j1y3CVIbY3PCmApoNz18cHq9BYzkfPBHdbl0n-BFcczo83uaHK4IeECnqdh6jWO0fYzTg5IZemNn3dVjJW-hlXnbapwfrm5siapVc/s1600/JACK+BEAUTIFUL.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="265" jsa="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwnG3dzeEplsWMzd-9Rt5WqA04iJVF0V-0qjuL00j1y3CVIbY3PCmApoNz18cHq9BYzkfPBHdbl0n-BFcczo83uaHK4IeECnqdh6jWO0fYzTg5IZemNn3dVjJW-hlXnbapwfrm5siapVc/s320/JACK+BEAUTIFUL.jpg" width="320" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Do it for the millions of people out there affected by this word. </span></div>
<div style="text-align: center;">
<em><span style="font-size: large;">Do it for Jack.</span></em></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">To this day, I hear people say the r-word around me and, believe it or not, some still even say it to me without even thinking about the pain they are causing. At these times, I politely pull these individuals aside to educate them about their poor word choice {misuse} and to tell them that, although I know they did not mean for it to be, it is incredibly offensive and hurtful to me and my family. Even so, I still continue to witness repeat offenders in my very own life by some of the people closest to me, from coworkers to friends in my social circle. I know it's "just a word" to you, but if it is "just a word," then <em>just stop saying it</em>. It's that easy. Because to me, that word is offensive, and it hurts me like a dagger to my heart. That word is derogatory. That word is NOT COOL. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">And, quite frankly, well ... I'm tired of it.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Jack is my son, who just happens to have an extra chromosome. <br />He will continue to grow and learn, and he will be a contibuting member of society. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">He will be respectful, and he will <em>ALWAYS</em> be your friend. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">So, please ... be his friend back. And, show him and others like him the RESPECT they deserve.</span> </div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: x-large;"><strong>The NEW R-word = RESPECT</strong></span></div>
<br />
<br />
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com1tag:blogger.com,1999:blog-718395149887179906.post-62759133737329803202012-10-31T17:46:00.001-07:002012-10-31T17:46:05.298-07:0031 for 21: DAY 31 :: HAPPY HALLOWEEN!!!<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: x-large;">"31 for 21" Mission Complete!</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: x-large;">We hope everyone had a wonderful, safe and happy Halloween!</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: x-large;">In lieu of a fact about Down syndrome, we decided to just end our "31 for 21" campaign with some Halloween cuteness!</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: x-large;">Captain Jack Sparrow says ...</span></div>
<div style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh85uUDFmqwaLg-R_mjOraq4r65DeEioyWEpDfXa55MN9f9qlFgnxZg6eSnRjeTnlnR0Cw0LJFd4Wt4jK2SI4yn53bhDkY8rbscRwSatjsnUJ0wpaI3U87QfanvWttuMsluM4Gv3Nga9yo/s1600/Captain+Jack.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" qea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh85uUDFmqwaLg-R_mjOraq4r65DeEioyWEpDfXa55MN9f9qlFgnxZg6eSnRjeTnlnR0Cw0LJFd4Wt4jK2SI4yn53bhDkY8rbscRwSatjsnUJ0wpaI3U87QfanvWttuMsluM4Gv3Nga9yo/s400/Captain+Jack.jpg" width="298" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>"YAAARRR!!! Happy Halloween, everyone!"</em></span></strong></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-21333904122196992152012-10-30T18:45:00.004-07:002012-10-30T18:58:39.164-07:0031 for 21: DAY 30 :: Just the way you are <div dir="ltr" style="text-align: left;" trbidi="on">
<div align="center">
<span style="font-size: large;">Believe it or not, people have said regarding Jack's Down syndrome, </span></div>
<div align="center">
<span style="font-size: large;"><em>"But, he'll grow out of it, right?"</em> or <em>"But, there's a cure for Down's, right?"</em></span></div>
<div align="center">
<span style="font-size: large;">I am not trying to dog anyone's intelligence or knowledge on the topic or anything, but I do want people to understand that Down syndrome is a <em>genetic condition</em>, </span><br />
<span style="font-size: large;"><u>not</u> a disease process.</span></div>
<div align="center">
<br /></div>
<div align="center">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #30:</strong></span></div>
<div align="center">
<br /></div>
<div align="center">
<strong></strong></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>There is no cure for Down syndrome.</em></span></strong></div>
<br />
<div style="text-align: center;">
<span style="font-size: large;">Besides, even if there <em>was</em> a cure for Down syndrome, I am not certain I would take away Jack's diagnosis.</span></div>
<div style="text-align: center;">
<span style="font-size: large;">I would still do everything in my power to help him lead the happiest, </span><br />
<span style="font-size: large;">fullest, and most productive life possible, </span><br />
<span style="font-size: large;">but I would leave my Jack just the <em>way he is</em>.</span></div>
<div style="text-align: center;">
<span style="font-size: large;">He is the way God made him, and I (and hopefully<em> you </em>too) love <u>him just the way he is</u>, </span></div>
<div style="text-align: center;">
<span style="font-size: large;">and I wouldn't change him for the world.</span></div>
<div style="text-align: center;">
<br /></div>
<span style="font-size: large;"><em></em></span><em><span style="font-size: large;"></span></em><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie8bWfl-E9BRFkaLBGM3QIHRhWAKhUKc4ceyGTbigCTumoVT-A7MTvuezMYCEYyMriIrwKSAi1kOH0K_rRBjD4vZyjo59ClwtevtIntUneo_4r5a65tfGSpR54CP1KqseKrxkI1LHLYQw/s1600/Buddy+Walk+2012+and+BK's+1st+Birthday+001.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-size: large;"><em><img border="0" height="266" qea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie8bWfl-E9BRFkaLBGM3QIHRhWAKhUKc4ceyGTbigCTumoVT-A7MTvuezMYCEYyMriIrwKSAi1kOH0K_rRBjD4vZyjo59ClwtevtIntUneo_4r5a65tfGSpR54CP1KqseKrxkI1LHLYQw/s400/Buddy+Walk+2012+and+BK's+1st+Birthday+001.jpg" width="400" /></em></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><em>Mommy loves you ... just the way you are!!!</em></span></td></tr>
</tbody></table>
<div style="text-align: center;">
<span style="font-size: large;">While there is no cure for Down syndrome, research is making strides in identifying the genes on chromosome 21 that cause the characteristics of Down syndrome. Because of these advances, scientists now feel strongly that it may be possible to improve, correct, or prevent many of the problems with cognition that are associated with Down syndrome.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Individuals with Down syndrome have an extra copy of their 21st chromosome in <em>every </em>cell of their bodies. There is no way of changing that. </span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">What <u>CAN</u> be changed about Down syndrome, however, is</span></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong><em>the way people perceive, treat, and value individuals with Down syndrome.</em></strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">How others view the diagnosis of Down syndrome, treat people with Down syndrome, and make fun and say things that hurt people like my son <em><strong>CAN</strong></em> be changed. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">My greatest hope in this world is for everyone to see Jack the way we see him. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">And, I hope that these last few weeks of reading this has helped you do so.</span></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-89103763480849174732012-10-29T13:53:00.004-07:002012-10-29T13:58:10.112-07:0031 for 21: DAY 29 :: Future Fears<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">As you all know well by now, individuals with Down syndrome can face many physical and cognitive challenges throughout their lives. During my "31 for 21" campaign to raise awareness, I have touched upon many of the difficulties that children with Ds are subject to, not in an effort to make you sad or feel sorry for us, but rather to open your eyes to the challenges people like Jack may potentially face. In doing so, I hope to enlighten others about Ds so that they may in turn help individuals like Jack become more valued and included in our day to day society.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Medical concerns for people with Down syndrome do not stop during childhood. There are also problems that adults with Ds may potentially face. I tend to find it easier to focus on our life one day at a time, but it is difficult to put out of mind one particular problem our sweet little boy might face as he ages .. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #29:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>One feature of Down syndrome is the development of Alzheimer-like plaques in the brain that generally manifests from about age 40 onward. This process can potentially result in early Alzheimer-like dementia, memory problems, and gradual decline in cognitive and physical functioning of adults with Ds.</em></span></strong></div>
<div style="text-align: center;">
<span style="font-size: large;"></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">I had heard about this aspect of Down syndrome since Jack's birth, but what was new to me during my research was that this brain degeneration has been observed in the autopsies of virtually <em>all</em> person with Down syndrome of this age and older. Moreover, I have learned that the National Alzheimer’s Research Plan, published in May 2012, underscores the relationship between Ds and Alzheimer’s disease and includes a focus on improving access to long-term services for younger victims of Alzheimer’s disease, including those with Down syndrome.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">While this realization is certainly scary, it also opens my eyes to the efforts being made by professionals to unlock the mysteries still remaining about Ds and to help individuals like our son Jack live the longest and most fulfilling lives possible. </span><br />
</div>
<div style="text-align: center;">
<span style="font-size: large;">And, knowing this gives me a <em>glimmer of hope amidst all the darkness</em>.</span></div>
<div style="text-align: center;">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvMnZBHVBOOn4MUyauhs3CoocImNW-JKFuHryZYSNggHMbye0EVjgJcKEZRipJMtBHk9CchWdbYnJ7BM581lg47l_cPOPMCyTPw8EOfCViDB9AhWOAn3zApRrtcUjJR0o04tbyx5c-Ba8/s1600/Buddy+Walk+2012+and+BK's+1st+Birthday+166.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" qea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvMnZBHVBOOn4MUyauhs3CoocImNW-JKFuHryZYSNggHMbye0EVjgJcKEZRipJMtBHk9CchWdbYnJ7BM581lg47l_cPOPMCyTPw8EOfCViDB9AhWOAn3zApRrtcUjJR0o04tbyx5c-Ba8/s400/Buddy+Walk+2012+and+BK's+1st+Birthday+166.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"></td></tr>
</tbody></table>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<br /></div>
<br />
<br />
<br />
<br />
<br /></div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-30481634115399870702012-10-28T17:22:00.001-07:002012-10-28T17:22:22.300-07:0031 for 21: DAY 28 :: Sad, but true<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">Cancer is a topic that no one likes to discuss, but it is one that is close to my heart. Many family members and close friends have been affected by cancer, with the most difficult being, of course, my father losing his battle with colon cancer in 2004 at the young age of 54. Cancer scares the living daylights out of me because it is so prominent in my family history. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">Now it scares me even more for another reason ...</span></div>
<div style="text-align: center;">
<br /><span style="font-size: large;"><strong>Down Syndrome Fact of the Day #28:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>Children with Down syndrome have an increased risk of leukemia compared to children without Down syndrome, with the vast majority of the affected cases taking place within the first 5 years of life.</em></span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">While children with Ds are more frequently affected by leukemia, they interestingly respond better and more rapidly to treatment than typical children do. Moreover, solid tumors are really rare in people with Down syndrome (leukemia is a blood cancer). Because of this, some researchers suggest that the extra 21st chromosome in Ds may actually hold many clues in cancer research! Pretty amazing, huh?!?!</span></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-18856455266714433692012-10-27T18:07:00.001-07:002012-10-27T18:10:48.370-07:0031 for 21: DAY 27 :: PARTAY Time!!!<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">Given that we celebrated both the Buddy Walk and Jack's littlest cousin Brooklyn's first birthday today, we are all pretty exhausted around here. While I promise to have more energy and share more tomorrow, I will take the time to tell you that it was a WONDERFUL day full of celebration for a beautiful cause. It was definitely the best turnout we have ever had at the Greensboro Buddy Walk, and we couldn't be prouder.</span></div>
<div style="text-align: center;">
<span style="font-size: large;"></span> </div>
<div style="text-align: center;">
<span style="font-size: large;"> We thank everyone from the bottom of our hearts for coming out to support Jack and others with Down syndrome in our community. We also thank all the people who made the Buddy Walk possible again this year, including sponsors, vendors, volunteers, family and friends. You could really feel the love today. After three years of doing this, it may have been my most emotional Buddy Walk yet, simply because of all the people who made an effort to be there to celebrate our kids. I just cannot explain my gratitude. We appreciate all the support we have gotten over the past two and a half years since Jack has been born, and we look forward to many more years of watching Jack blossom together. </span></div>
<div style="text-align: center;">
<span style="font-size: large;"></span> </div>
<div style="text-align: center;">
<span style="font-size: large;">We got to top off our day with a great 1st birthday party for my sweet niece Brooklyn and quality family time. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">What a wonderful day it was in so many ways.</span></div>
<div style="text-align: center;">
<span style="font-size: large;"></span> </div>
<div style="text-align: center;">
<span style="font-size: large;">After I am a little better rested, I promise to share some great photos from BOTH the Buddy Walk and sweet Brooklyn's party, but for now, I must be with my family ... and <em>rest</em>. :)</span></div>
<div style="text-align: center;">
<span style="font-size: large;"></span> </div>
<div style="text-align: center;">
<span style="font-size: large;">I will, however, leave you with this ...</span></div>
<div style="text-align: center;">
<span style="font-size: large;"></span> </div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #27:</strong></span></div>
<div style="text-align: center;">
<strong></strong> </div>
<div style="text-align: center;">
<strong><em><span style="font-size: x-large;">Kids with Down syndrome (and their amazing families) sure know how to have a GREAT time!!! :))))</span></em></strong></div>
<div style="text-align: center;">
<span style="font-size: large;"></span> </div>
<div style="text-align: center;">
<span style="font-size: large;">Also, </span><br />
<span style="font-size: large;"><strong>HAPPY 1st BIRTHDAY,</strong></span></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>SWEET BROOKLYN!!!</strong></span></div>
<div style="text-align: center;">
<span style="font-size: large;">We love you, and we're so glad we got to celebrate with you today in more ways than one! We are one LUCKY family!!!</span></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com2tag:blogger.com,1999:blog-718395149887179906.post-78478457124333701362012-10-26T16:05:00.002-07:002012-10-26T16:05:42.286-07:0031 for 21: DAY 26 :: HandiCAPABLE<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">I have heard from more than one person that adults with Down syndrome have the minds and abilities of "a 12 year old". </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><em>Well, this is NOT the case.</em></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #26:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: x-large;"><strong><em>Children with Down syndrome do NOT “plateau”.</em></strong></span></div>
<span style="font-size: large;"></span><br />
<span style="font-size: large;"><br /></span>
<div style="text-align: center;">
<span style="font-size: large;">Each person with Down syndrome has his or her own talents and unique capabilities, and it is important recognize these and reinforce them. Learning is a lifelong experience for people with Down syndrome, just like everyone. Individuals with Down syndrome do in fact learn at a slower pace but nonetheless, continue to learn throughout their lifespan.</span></div>
<br />
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com1tag:blogger.com,1999:blog-718395149887179906.post-31815660485889705592012-10-25T11:19:00.001-07:002012-10-25T11:21:46.047-07:0031 for 21: DAY 25 :: Painful Truth<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">Years ago when babies with Down syndrome were born, a common concern was life expectancy. While it pains me to discuss this, because I could <strong><em>NEVER</em></strong> imagine my life without my sweet Jack in it, it is something that I have to think about. </span><br />
<span style="font-size: large;">The truth hurts sometimes.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Thanks to advances in medical and clinical treatment and societal opportunities to thrive, individuals with Down syndrome are currently living much longer and fuller lives. I can only hope that as Jack ages, there will continually be more and more advances being made to help him live an even longer and fuller life.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #25:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>As many as 80 percent of adults with Down syndrome reach age 55-65, and many live longer.</em></span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Research on the topic of life expectancy in individuals with Ds is surprisingly a bit limited; but what I found was quite interesting. A 1991 study looked at over 12,000 people with DS and found that <em>major medical problems</em> were not a consistent predictor of mortality, which was a common belief. Instead, <em>self-help skills</em> were the best predictor of life expectancy. Regardless of these findings, it would be foolish to predict how long a baby born now with DS would live as so many things can change for them medically and socially in the next decades.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">While it is important to point out, I try not to dwell on the fact that my son's life expectancy is less than the average, due to <em>obvious </em>reasons. What I choose to focus on instead is how to help Jack be the absolute BEST Jack he can be for his ENTIRE life...</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">... and give him <em><strong>LOADS OF LOVE</strong></em> along the way!</span></div>
<br />
<br />
<br />
<br />
<br /></div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-34065542533978872312012-10-24T19:28:00.000-07:002012-10-24T19:28:05.627-07:0031 for 21: DAY 24 :: "Defiance"<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">Not sure if you've ever heard this before, but I have been told that individuals with Down syndrome can be quite defiant. I don't know how I feel about this.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Honestly, I think that people who are called "defiant" or "stubborn" are just often misunderstood.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day # 24:</strong></span></div>
<div style="text-align: center;">
<br /></div>
</div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>Individuals with Down syndrome are NOT (always :) stubborn.</em></span></strong></div>
<div style="text-align: center;">
<span style="font-size: large;"></span></div>
<span style="font-size: large;"><div style="text-align: center;">
<br /></div>
</span><div style="text-align: center;">
<span style="font-size: large;">A child with Down syndrome may not always be able to tell you how he or she feels, so this can easily lead to the false perception that they are stubborn of defiant. This is not the case. Behavior is communication, so if you're having trouble communicating with a young person with Ds, consider all of the circumstances. </span></div>
<div style="text-align: center;">
<span style="font-size: large;"><em>Are they experiencing communcation or sensory integration difficulties?</em></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">I find that Jack has "tantrums" or acts out with "defiance" mostly when he is frustrated and unable to communicate his needs to me. (Also, let's face it ... he's also TWO!!! Ha! ;) As frustrating as this can be on the receiving end, I never question my child's intelligence. Jack's nonverbal cues, whether they're signs or other indications) prove that he KNOWS exactly what is going on around him; it's just his inability to verbalize this understanding that misleads others into assuming that he doesn't.</span></div>
<br />
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-17524906206906731732012-10-23T11:55:00.002-07:002012-10-23T12:10:14.359-07:0031 for 21: DAY 23 :: What if?<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">Down syndrome is a lot more common that you would probably think. In fact, it is the most commonly occuring genetic condition. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #23:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong><span style="font-size: x-large;"><em>One in every 691 babies in the United States is born with Down syndrome, and there are more than 400,000 people with Down syndrome currently living our country.</em></span> </strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">This statistic always makes me scratch my head a little. It does so because it makes my thoughts travel to some quite dark and controversial places (that I <em><strike>cowardly</strike> </em>typically try to avoid). But this is one case in which I must bring out some "<em>not-so-talked-about</em>" facts surrounding the topic, like the following: </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<em><span style="font-size: large;">Of the women who receive a definitive diagnosis that their baby has Down syndrome, some studies demonstrate that approximately 90% of those women choose abortion. </span></em></div>
<div style="text-align: center;">
<span style="font-size: large;"><br /></span></div>
<div style="text-align: center;">
<span style="font-size: large;">Now, I won't get into my beliefs and values on this topic here (<em>as my intention is NOT to raise controversy</em>), but I will tell you that this statistic never leaves my thoughts, day in and day out. </span><br />
<span style="font-size: large;">It makes me wonder about a lot of things. </span><br />
</div>
<div style="text-align: center;">
<span style="font-size: large;">Specifically, it makes me wonder if the mothers of these unborn children with Down syndrome are receiving <em> <strong>accurate</strong></em> information about what their child's life would be like if they chose to continue their pregnancies. </span></div>
<div style="text-align: center;">
<span style="font-size: large;"><br /></span></div>
<div style="text-align: center;">
<em><span style="font-size: large;">Were their decisions <strong>truly</strong> well-informed? </span></em><br />
</div>
<div style="text-align: center;">
<em><span style="font-size: large;">Or, like many parents I have personally met, were they blatantly <strong>encouraged</strong> to terminate their pregnancies based on the diagnosis alone? </span></em><br />
</div>
<div style="text-align: center;">
<em><span style="font-size: large;">Were they even offered advice from a <strong>real</strong> mother of a<strong> real</strong> child with Down syndrome? </span></em><br />
</div>
<div style="text-align: center;">
<em><span style="font-size: large;">Were they ever given the opportunity to hear from a parent how much <strong>JOY </strong>their child would bring them, in addition to the challenges?</span></em><br />
</div>
<div style="text-align: center;">
<em><span style="font-size: large;">(Or were they just given a bunch of brochures and statistics and guided to the closest abortion clinic?)</span></em></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Lastly, I wonder ... what if these parents had chosen NOT to terminate these pregnancies?</span></div>
<div style="text-align: center;">
<span style="font-size: large;"><em><strong>How many more individuals with Down syndrome would now be walking among us? </strong></em></span></div>
<div style="text-align: center;">
<span style="font-size: large;">It is when I wonder about this that I cannot help but think how clear it is to me that these unique and special individuals are supposed to be<strong> <u><em>part of our world</em></u></strong>.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXt-wJHCYFlvUaP0tWoRK4VxpURhoTndYlBIXj1-_J7yCIp1qBVuKHMJMPxTnkaC-hqjUdd4S6uaYqp1qf32J9b2LeyXH7iuB2ANqr9pqi6cuZYYnl6eEHSck5s0uQmpRd3tZGwTzW5EM/s1600/Baby+Jack+&+OBX+155.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" oea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXt-wJHCYFlvUaP0tWoRK4VxpURhoTndYlBIXj1-_J7yCIp1qBVuKHMJMPxTnkaC-hqjUdd4S6uaYqp1qf32J9b2LeyXH7iuB2ANqr9pqi6cuZYYnl6eEHSck5s0uQmpRd3tZGwTzW5EM/s320/Baby+Jack+&+OBX+155.jpg" width="246" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><em>So glad you are part of our world ...</em></td></tr>
</tbody></table>
<div class="separator" style="clear: both; text-align: center;">
<br /></div>
<span style="font-size: large;">We were not given a prenatal diagnosis of Ds when I was pregnant with Jack, but when he was diagnosed at birth, my midwife wept while she discussed it with me. I was the first one to assure her that, had they found Jack's Ds prenatally, we would have still been sitting there on that very day of <em>May 28, 2010</em>, looking upon the face of my beautiful newborn son together.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<br /></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com2tag:blogger.com,1999:blog-718395149887179906.post-33363990040559823262012-10-22T17:52:00.003-07:002012-10-22T17:52:59.986-07:0031 for 21: DAY 22 :: Hypotonia<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">Many people ask me how Down syndrome affects Jack. Although there are many differences between children with Ds, because they are all uniquely individual; there are often similar characteristics that most kids with Ds share. One of these traits, for example, is low muscle tone.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #22:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>Individuals with Down syndrome generally have decreased muscle tone, or </em></span></strong><a href="http://www.ninds.nih.gov/disorders/hypotonia/hypotonia.htm"><strong><span style="font-size: x-large;"><em>hypotonia</em></span></strong></a><strong><span style="font-size: x-large;"><em>.</em></span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Hypotonia is a medical term used to describe decreased amount of resistance to movement in a muscle. In lay terms, muscle tone is the way in which our muscles react to gravity. It is not a measure of strength or weakness (so you can't increase your muscle tone by lifting weights!). There is no perfect or completely normal tone, and there is a range from low to high. Many of us have generally low muscle tone, which is why we often slouch. Children with Down syndrome generally have <em>quite</em> low muscle tone. Jack’s hypotonia has always been defined by professionals as “mild” but even so, we have physical therapy every other week to help him reach gross motor milestones that are less challenging for typically developing children with higher tone.</span></div>
<div style="text-align: center;">
<br /></div>
</div>
<div style="text-align: center;">
<span style="font-size: large;">Symptoms of hypotonia include problems with mobility and posture, breathing and speech difficulties, lethargy, ligament and joint laxity and poor reflexes. This is why many kids with Down syndrome (including Jack) have flat feet and a bit of a sway-back posture. Children with Ds are usually hyperflexible due to their lower tone and ligamental laxity. When Jack is tired or sick, you may also notice that he feels a bit “floppy” when you pick him up. This was more apparent when he was an infant. </span></div>
<span style="font-size: large;"><div style="text-align: center;">
<br /></div>
</span><div style="text-align: center;">
<span style="font-size: large;">To understand the physical demands placed on children with Down syndrome by low muscle tone, many professionals say <em>to imagine cooking dinner while wearing socks on your hands</em>. That would be quite challenging, wouldn't it?!?! Well, thanks to regular physical and occupational therapies, Jack is becoming more and more independent and likewise less frustrated completing daily activities. </span></div>
<span style="font-size: large;"><div style="text-align: center;">
<br /></div>
</span><div style="text-align: center;">
<span style="font-size: large;">The take away message about hypotonia here is that developing general motor milestones is important for children with low muscle tone, and absolutely achievable; it just sometimes takes them longer. For caregivers, it is important to encourage ALL skills that other children are doing, but sometimes we have to modify or just provide a little extra help for them to gain proficiency in these skills. Like <em>any</em> child, practicing these skills helps to build muscle and lays the foundation for later development.</span></div>
<br />
<div align="center">
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com2tag:blogger.com,1999:blog-718395149887179906.post-85913066693031785422012-10-21T16:01:00.002-07:002012-10-21T16:02:49.773-07:0031 for 21: DAY 21 :: Uniquity<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #21:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><em><span style="font-size: x-large;">There is a wide variation in mental abilities, behavior and physical development in individuals with Down syndrome. Each individual has his/her own unique personality, capabilities and talents. </span></em></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">In other words, people with Down syndrome are not all the same; just like individuals in the typical population are not all the same. Children with Down syndrome are more alike their typically developing peers than they are different.</span></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-32237070589404323432012-10-20T11:33:00.000-07:002012-10-20T14:30:04.713-07:0031 for 21: DAY 20 :: Buddy Walk<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">In just ONE WEEK, the Down Syndrome Network of Greater Greensboro will hold it's </span><a href="http://www.buddywalkgreensboro.org/"><span style="font-size: large;">Ninth Annual Buddy Walk</span></a><span style="font-size: large;">! </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">For those of you unfamiliar with the </span><a href="http://www.ndss.org/Buddy-Walk/"><span style="font-size: large;">Buddy Walk</span></a><span style="font-size: large;">, it is not just a local event. Buddy Walks take place <em>all over the country</em> during the month of October to raise awareness and promote inclusion of inviduals with Down syndrome.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #20:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>The Buddy Walk program was established in 1995 by the <a href="http://www.ndss.org/">National Down Syndrome Society</a> to promote acceptance and inclusion of people with Down syndrome and to celebrate Down Syndrome Awareness Month in October. The name Buddy Walk promotes inclusion between friends of every ability.</em></span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6i277RbaHI0TWTEfIQxCoDxbQO69wQ2t4B51kurasalAz6l3euKB20ZCQglp_De5-3bN4wavP3DlXF57zKqd0HT7EW92GiuYadcmCAVmx0flYDKp0gH7y6hS7TF0Qk2IJ2oR9Kd3g2to/s1600/BW+Logo.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="270" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6i277RbaHI0TWTEfIQxCoDxbQO69wQ2t4B51kurasalAz6l3euKB20ZCQglp_De5-3bN4wavP3DlXF57zKqd0HT7EW92GiuYadcmCAVmx0flYDKp0gH7y6hS7TF0Qk2IJ2oR9Kd3g2to/s320/BW+Logo.jpg" width="320" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">This month, over 250 Buddy Walks will take place throughout the United States to celebrate individuals with Down syndrome, like our son Jack. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Our local Buddy Walk is organized by the Down Syndrome Network of Greater Greensboro (of which I am a proud board member), and it will be on <strong>Saturday, October 27th from 11 am until 3 pm at <a href="http://www.co.guilford.nc.us/webapps/parks/info.asp?id=5">Triad Park</a> in Colfax, N</strong>C.</span></div>
<div style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigJjKhcC4WJUdFi-5ySeqZzZHcRLssPlgmHAg59N18CRd4giUia6h6FPlugm35ze0s4WEk6XW05rbWCLPATG-7K9BZK73wdx_FLtOJUul55VpXD8xA9H1bjW0uI5iJcJfGlnd6gG7AQec/s1600/Buddy+Walk+2011+060.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="425" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigJjKhcC4WJUdFi-5ySeqZzZHcRLssPlgmHAg59N18CRd4giUia6h6FPlugm35ze0s4WEk6XW05rbWCLPATG-7K9BZK73wdx_FLtOJUul55VpXD8xA9H1bjW0uI5iJcJfGlnd6gG7AQec/s640/Buddy+Walk+2011+060.jpg" width="640" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">We would love for your family to join us and walk with "Jack's Pack" this year! </span></div>
<div style="text-align: center;">
<span style="font-size: large;"><a href="http://www.buddywalkgreensboro.org/">Click here to register online</a>.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">If you are unable to walk with us this year but still want to show your support, please consider a <a href="http://www.buddywalkgreensboro.org/pledge/pledge_search.cfm">donation</a> to the Down Syndrome Network of Greater Greensboro in Jack's honor. Thanks!</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<br /></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-81389847520644842562012-10-19T06:41:00.003-07:002012-10-19T06:41:28.747-07:0031 for 21: DAY 19 :: Independence<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">When we learned of Jack's diagnosis of Down syndrome, I must admit that one of the thoughts that ran through my head was, <em>"Does this mean that he is going to live with us FOREVER?!?!?"</em> It certainly could mean this, but it might not.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #19:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><em><span style="font-size: x-large;">Not all people with Down Syndrome will live at home forever.</span></em></strong></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong></strong></span></div>
<span style="font-size: large;"><div style="text-align: center;">
<strong><br /></strong></div>
</span><div style="text-align: center;">
<span style="font-size: large;">In fact, a large percentage of adults with Down syndrome live independently or semi-independently in assisted living facilities and group homes. Moreover, many adults with Down syndrome often hold jobs and have romantic relationships, including marriage. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Truth be told ... I would be just <strong>FINE</strong> if Jack wanted to live with us forever. :) As I watch him grow, the thought of him ever leaving home actually really saddens me. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">I want Jack to be able to make the decision himself about where he wants to live when he gets older. If he wants to live on his own, with roommates, or in a group setting, we will do everything in our power to make that happen. We want to help Jack achieve the most independence possible, as long as that is what he wants. But at the same time, if Jack decides to stay home with us as an adult, I will certainly enjoy his cheerful company!!!</span></div>
</div>
<br />
<br />
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-54420887691577805312012-10-18T12:03:00.004-07:002012-10-18T12:03:52.172-07:0031 for 21: DAY 18 :: Valuable<div dir="ltr" style="text-align: left;" trbidi="on">
<div align="center">
<span style="font-size: large;">One of the misconceptions about Down syndrome that particularly frustrates me is the idea that adults with Down syndrome are not able to hold jobs and be contributing members of society. This is just not so.</span></div>
<div align="center">
<br /></div>
<div align="center">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #18:</strong></span></div>
<div align="center">
<br /></div>
<div align="center">
<strong><span style="font-size: x-large;"><em>People with Down syndrome ARE employable.</em></span></strong></div>
<div align="center">
<br /></div>
<div align="center">
<span style="font-size: large;">In fact, many businesses actively seek young adults with Down Syndrome for a variety of positions. They are being employed in small and medium sized offices, by banks, corporations, nursing homes, hotels, and restaurants. They work in the music and entertainment industry, in clerical positions, and in the computer industry. People with Down Syndrome are very valuable employees, as they bring to their jobs enthusiasm, reliability, and dedication.</span></div>
<div align="center">
<br /></div>
<div align="center">
<span style="font-size: large;">Among our biggest aspirations for Jack's future is for him to be able to hold a job, if he decides that he wants to do so. Now, we realize that Jack won't become a doctor or a lawyer, like many parents dream for their children. </span><span style="font-size: large;"><em>But, who cares?!?!?</em> They work too long of hours anyhow. (And besides, I know TONS of people <em>without</em> Down syndrome who could also never be doctors or lawyers!!!)</span></div>
<div align="center">
<br /></div>
<div align="center">
<span style="font-size: large;">Jack will be whatever he chooses to be, and he will be GREAT at it. </span></div>
<div align="center">
<span style="font-size: large;">And ... he will <em>SMILE</em> the whole time he does it!</span></div>
<div align="center">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhaGmH9mriHMaqrO5-slBNxB0nxyRml6qqaRve6wZXAVFyUBHXkdYnWTWbhKyyBK3sFCpuYcffd8MpnAhOr6RzstWF0zG8K1ccvdfY8d5JQBOfdbZ5dzzgup24wl37MVLaylX8BlQJ_ZbM/s1600/JACK+CUTIE.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhaGmH9mriHMaqrO5-slBNxB0nxyRml6qqaRve6wZXAVFyUBHXkdYnWTWbhKyyBK3sFCpuYcffd8MpnAhOr6RzstWF0zG8K1ccvdfY8d5JQBOfdbZ5dzzgup24wl37MVLaylX8BlQJ_ZbM/s320/JACK+CUTIE.jpg" width="239" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><em>I mean, who wouldn't want to hire this guy?!?!?</em></span></td></tr>
</tbody></table>
<div align="center">
<br /></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-58748608778612111532012-10-17T10:47:00.001-07:002012-10-17T10:54:20.727-07:0031 for 21: DAY 17 :: Family Traits<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">Individuals with Down syndrome often share some common physical traits, but they do not all look alike. Yes, they each have three 21st chromosomes, but ALL of their chromosomes (even the extra one) are made up of genetic material they have inherited from their parents. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #17:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>Despite physical similiarities, individuals with Down syndrome look more like their parents than they look like other people with Down syndrome.</em></span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">A few of the common physical traits of Down syndrome are low muscle tone, flattened nasal bridge, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.</span></div>
<div style="text-align: center;">
<span style="font-size: large;"></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">When Jack was born, my mom and sisters could not get over how much he looked like me when I was a baby. Yes, Jack does have a single palmar crease and decreased muscle tone, both characteristics of Ds, but he also got my blonde hair (okay, well I <em>used</em> to be blonde!), my blue eyes, and my small nasal bridge. I definitely see quite a bit of Robert in Jack as well (particularly in his bright smile :), but I am mostly told told by others that he <em>"looks just like his Mommy"</em>. :)</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Down syndrome or no Down syndrome, it is apparent who his parents are. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">Jack may have gotten an extra chromosome when he was conceived, </span><br />
<span style="font-size: large;">but <u>ALL 47</u> of them are from US!!!</span></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi00jl5irM9XYl9t3a6vASlJYarH9J8tcxALzqc1ZBlsMRGzg9TBesIlUVMAWC9PGBtgARWE-EGeBiCu5_-mouMNfQPClYeKCE7SnoBMzLjM-R-yk2WWxTzYqEze5Sj5vlyqk5Gj2HV0I4/s1600/Korey+at+2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="298" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi00jl5irM9XYl9t3a6vASlJYarH9J8tcxALzqc1ZBlsMRGzg9TBesIlUVMAWC9PGBtgARWE-EGeBiCu5_-mouMNfQPClYeKCE7SnoBMzLjM-R-yk2WWxTzYqEze5Sj5vlyqk5Gj2HV0I4/s400/Korey+at+2.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><em>Here is a photo of me with my dog, when I was about Jack's age</em></span></td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZsJTpoXlMPqzn-lQJ5iqXGql_2b49ohML8WKpNxZJ7HLrWjbLFZKdN6YysAd7JEE3qAykPHAeATdLc5zSkSPIO9V_fqlgtb91U16y6sWmrZ2gRXyD4zmud4Fl38ENBFFGqPFXyWDrvAo/s1600/JACK+PHOTO+BOMB+2511.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZsJTpoXlMPqzn-lQJ5iqXGql_2b49ohML8WKpNxZJ7HLrWjbLFZKdN6YysAd7JEE3qAykPHAeATdLc5zSkSPIO9V_fqlgtb91U16y6sWmrZ2gRXyD4zmud4Fl38ENBFFGqPFXyWDrvAo/s320/JACK+PHOTO+BOMB+2511.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><em>Can you see the resemblance?</em></span></td></tr>
</tbody></table>
<div align="center">
</div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com1tag:blogger.com,1999:blog-718395149887179906.post-63312116612318456482012-10-16T11:09:00.000-07:002012-10-16T11:09:07.904-07:0031 for 21: DAY 16 :: Perspective<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">When parents learn that their baby has Down syndrome, they react in a number of ways. Some cry, some pray, some are completely "okay" with it. Regardless of the reaction and regardless of how much a parent LOVES their baby with Down syndrome, I think everyone goes through a little bit of<em> "Why me?".</em> And, in times of particular stress, I feel that it is pretty normal for some parents to wonder, <em>"What did I do to deserve this?"</em> I would be lying if I said I hadn't wondered these things myself from time to time. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #16:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>There is no known way to prevent the Down syndrome, and n<span style="font-family: 'Times New Roman';">othing that a parent did or did not do during the pregnancy causes a baby to have Down syndrome. </span></em></span></strong></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong></strong></span></div>
<div style="text-align: center;">
<br /><span style="font-size: large;">The more time I have with Jack, the more I realize that Down syndrome isn't something that happened <em>to me</em>; it is something that happened <em>for me</em>. And, <em>I believe it happened for a reason.</em></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Before Jack was born, I was way more impatient and intolerant than I am now. I judged a little too quickly, and I hastened through life without recognizing the beauty in the small moments. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">I <em>needed</em> the baby I was given, to give me a newer and brighter perspective on life that I had been unknowingly lacking all along.</span></div>
<div style="text-align: center;">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggwllPYMmrTj41Lv6mn4Z1EYgKx9Jw3zcqd8ut9_ClaUKkajYie3wXdOXOX5tVFFf77yHo7NF5b-Py5c8HHr1oO6vEs7px-Hs9DUZjHoL4WX8PMELu2anEux8quzuQweWm9IRBkO6dYnw/s1600/First+Day+of+Preschool+and+Beach+Trip+September+2012+015.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggwllPYMmrTj41Lv6mn4Z1EYgKx9Jw3zcqd8ut9_ClaUKkajYie3wXdOXOX5tVFFf77yHo7NF5b-Py5c8HHr1oO6vEs7px-Hs9DUZjHoL4WX8PMELu2anEux8quzuQweWm9IRBkO6dYnw/s400/First+Day+of+Preschool+and+Beach+Trip+September+2012+015.jpg" width="266" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><em>Ray of sunshine</em></span></td></tr>
</tbody></table>
<div style="text-align: center;">
<br /></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-68866311310847991182012-10-15T11:23:00.004-07:002012-10-15T11:27:56.085-07:0031 for 21: DAY 15 :: Extra Chromosome Love<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">We often get comments like, <em>"Jack doesn't really look like he has Down's"</em> or <em>"his Down's is really mild, right?!?!"</em> While I understand what you are <u>trying</u> to say (<em>that my kid is <strong>adorable </strong>and appears to be high functioning ;),</em> it can be a little irritating to hear these things. </span></div>
<div style="text-align: center;">
<br />
<span style="font-size: large;">Let me clarify a little ...</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #15:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div>
</div>
<div style="text-align: center;">
<span style="font-size: x-large;"><strong><em>Someone with Down syndrome HAS Down syndrome in every cell of their body. They CANNOT only have a "little bit of Downs". </em></strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Furthermore, it's okay if Jack looks like he has Down syndrome, because {*NEWSFLASH*} ... he <em>DOES</em> have Down syndrome! So, therefore it's actually not a compliment when somebody tells me that Jack doesn't really look "that Downs". In fact, it's actually a bit rude. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><em>Are you saying that Jack would be cuter if he didn't have Down syndrome? </em></span><br />
<span style="font-size: large;"><em>Are you implying that he would be less valued if he looked more like he had Down syndrome?</em></span><br />
</div>
<div style="text-align: center;">
<span style="font-size: large;">That's like saying that someone's gray hair doesn't make them look<em> that</em> old, or that someone is not<em> that</em> fat. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">So, you can see why it hurts our feelings a bit. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"> Jack has an extra chromosome, and although it does not define him, </span><br />
<span style="font-size: large;">it is a part of who he is. </span><br />
</div>
<div style="text-align: center;">
<span style="font-size: large;">And, we LOVE <em>every bit</em> of it!</span><br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSQprSbdT_cNkvrd-06gWaNBAdC3MusBEmV3pvRXK05lCA0vlFcjz6-A_RkVIu7JPccWW5v_CGpB1Shs5RmydQbnR9xaUvxrMKqxXR6JptI5yZ2y9I8Uredsr18byo6-IQ60qPxU4ryi0/s1600/Jack+on+Schoolbus.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSQprSbdT_cNkvrd-06gWaNBAdC3MusBEmV3pvRXK05lCA0vlFcjz6-A_RkVIu7JPccWW5v_CGpB1Shs5RmydQbnR9xaUvxrMKqxXR6JptI5yZ2y9I8Uredsr18byo6-IQ60qPxU4ryi0/s320/Jack+on+Schoolbus.jpg" width="200" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><em><span style="font-size: small;">Spreading the extra chromosome love!</span></em></td></tr>
</tbody></table>
</div>
<div style="text-align: center;">
</div>
<div style="text-align: center;">
<br /></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-47491665143664374762012-10-14T18:21:00.003-07:002012-10-14T18:28:32.255-07:0031 for 21: DAY 14 :: Beyond Ds<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">I just spent the majority of my day wondering how I got so lucky to be married to the man to whom I am married and to have the son that I have. Being that I had such a wonderful time hanging out with my "main men" today, </span><span style="font-size: large;">I hope you can understand why I don't really feel much like talking much about Down syndrome. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">The reason why is that <em>Down syndrome does not dictate our life</em>. It influences it a bit, but by no means does it define our family. We wake up and go about our days just like anyone else does. The greatest difference between our life and most others' is that when they go to lunch or play dates, we're most likely headed to a therapy appointment. </span><br />
<span style="font-size: large;"><em>Big whoop! </em> </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">We definitely still have plenty of time for <strong>A LOT of fun</strong>! </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><em>See?????</em></span></div>
<div style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiG4Yfn7qfvCdLGDVhGswVTaY_H7MTvrTf0WIGdXlJht0B-kVeby9V1cxyZKaEYEjpJ5_FQQfDc2ARq63n0sxHn6GPz56Ve5e3f92oighcDAFHuSLP-5ExAipe_OJ8mILKKPYJzY8awHe8/s1600/Jack+pumpkin+patch.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiG4Yfn7qfvCdLGDVhGswVTaY_H7MTvrTf0WIGdXlJht0B-kVeby9V1cxyZKaEYEjpJ5_FQQfDc2ARq63n0sxHn6GPz56Ve5e3f92oighcDAFHuSLP-5ExAipe_OJ8mILKKPYJzY8awHe8/s320/Jack+pumpkin+patch.jpg" width="320" /></a></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #14:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>While individuals with Down syndrome need additional assistance to achieve many of the same milestones as typically-developing people, they are capable of reaching extraordinary goals and living <u>very</u> full and happy lives.</em></span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><em>REALLY full and REALLY happy ...</em></span></div>
<div style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcU01lEQMSnejv3zSah1g6LZg_KAaRVOIBSQSnsnRPnZ94txym_3EGJ7y5aSZZJfkwG0HpkHftgLeCxmqh7UsrwfdC0scop8h4JvNzjLXgFzApmwiVHoXTMEnrCLK8p6LOCw_Du7BHbvY/s1600/Jack+pumpkins.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcU01lEQMSnejv3zSah1g6LZg_KAaRVOIBSQSnsnRPnZ94txym_3EGJ7y5aSZZJfkwG0HpkHftgLeCxmqh7UsrwfdC0scop8h4JvNzjLXgFzApmwiVHoXTMEnrCLK8p6LOCw_Du7BHbvY/s320/Jack+pumpkins.jpg" width="320" /></a></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-997525515439554212012-10-13T14:13:00.004-07:002012-10-13T14:13:57.749-07:0031 for 21: DAY 13 :: Future Generations<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">In case you were wondering, couples with Down syndrome can and do get married. However, it is unlikely for them to ever have biological children together.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: large;">Down Syndrome Fact of the Day #13:</span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>Males with Down syndrome are usually unable to father children, while females demonstrate significantly lower rates of conception relative to unaffected individuals. </em></span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Women with DS are less fertile and often have difficulties with miscarriage, premature birth, and difficult labor. Men with DS are almost uniformly infertile. There have been only three recorded instances of males with Down syndrome fathering children.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Now I know it probably seems a little odd to be talking about my child's potential for procreation while he's only 2 years old, but being that Jack is a little different, it is impossible to not think about what the future holds for him. While it used to make me a little sad knowing that Jack will never experience fatherhood, I soon realized that many adults <em>without Down syndrome</em> are unable to have children biologically. <em>No one</em> can ever predict exactly how things will go in their lives, especially with the added complication of special needs. Jack's inability to father a child, however, just so happens to be the one thing we <em>can</em> predict about Jack's future. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">So, Jack will not be a father to a child, but we are certain that he will be the greatest son, grandson, uncle, nephew and cousin in the whole, wide world! :)</span></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-52258163738860612652012-10-12T18:21:00.001-07:002012-10-12T18:24:48.188-07:0031 for 21: DAY 12 :: Health Matters<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">I am sure that many of you already know this, but for those of you less familiar with Down syndrome, I want to take a moment to point out some of the health problems that are associated with the condition. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #12:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>Many children with Down syndrome have health complications beyond the usual childhood illnesses. </em></span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Approximately 40% of children with Ds have congenital heart defects. These children also have a higher incidence of gastrointestinal abnormalities. They are generally at more risk of infection, and can have respiratory, thyroid, dental, vision, and hearing problems, among other medical conditions. Despite this daunting list of possible ailments, children and adults with Down syndrome can lead very healthy lives with appropriate medical care, nutrition, and healthy habit-forming. </span></div>
<div style="text-align: center;">
<span style="font-size: large;"></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">We have been incredibly fortunate that Jack did not require heart surgery or any other type of surgery as a baby, and we count our blessings every single day for that. A number of Jack's little friends, both <em>with and without</em> Down syndrome, have undergone heart repairs and other surgeries, and thanks to medical technology, they are now thriving. I feel obligated to point out here as well that with added health concerns comes <em>obvious</em> added stress on parents and caregivers of children with Down syndrome.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">We know that we are certainly not out of the woods with potential health issues in the future with Jack, and he does have little health "quirks" that we deal with (GERD, for example), but we feel fortunate that he has been a pretty healthy kid thus far. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">We thank God every day for your health, little man, and we pray continuously for you to live a very long and full life! </span></div>
<div style="text-align: center;">
<span style="font-size: large;"><em>Keep it up!</em></span></div>
<div style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG_Kv0CVibEheuuO490xkRmTByzgJ7tUBQ8Y19B-bIhzInGuyFdtxWnB75fHEmtxKd7jFSypAh1aYF7YXXDm3y07wVVXJNkwrvNRCqS4qjyBqAgt0eMgEWezQyXt8mGK8B_Au_83h1c4c/s1600/Jack+cheeze.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="239" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG_Kv0CVibEheuuO490xkRmTByzgJ7tUBQ8Y19B-bIhzInGuyFdtxWnB75fHEmtxKd7jFSypAh1aYF7YXXDm3y07wVVXJNkwrvNRCqS4qjyBqAgt0eMgEWezQyXt8mGK8B_Au_83h1c4c/s320/Jack+cheeze.JPG" width="320" /></a></div>
<br />
<div align="center">
</div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-34368961469555744052012-10-11T17:03:00.001-07:002012-10-11T17:04:46.071-07:0031 for 21: DAY 11 :: Unlocking Potential<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">It irritates me when people underestimate my son's abilities. Not that this happens often or anything, but it has happened, and I am sure it will happen again. Because Jack has Down syndrome, his speech is delayed in comparison to typically developing children, and others have difficulty understanding what he is trying to communicate (through either speech or sign language). It is an unfortunate truth that when people cannot understand someone's speech, they tend to underestimate that person's abilities. This is sad, but so, so true. And, it is one of the things that is most difficult on parents of children with cognitive delays. It is particularly difficult when I know that Jack is indeed a very bright and intelligent little boy with LOTS of things to say and do. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">He just happens to say and do things in a different way than most others. </span><br />
<span style="font-size: large;">It's not that he <em>can't</em>.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: large;">Down Syndrome Fact of the Day #11:</span></strong></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><em><span style="font-size: x-large;">People with Down syndrome do not have <u>severe</u> cognitive delays.</span></em></strong></div>
<div style="text-align: center;">
<span style="font-size: large;"></span></div>
<div style="text-align: center;">
<span style="font-size: large;"><br /></span></div>
<div style="text-align: center;">
<span style="font-size: large;">The truth is most people with Down syndrome have cognitive delays that are <em>mild </em>to<em> moderate</em>. Moreover, according to many professionals, IQ is not even an adequate measure of the functional status of people with Down syndrome. Individuals with Down syndrome have great potential if given adequate opportunities and support.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">We know that Jack is incredibly smart and has unlimited potential that we cannot wait to unlock as he grows and develops further. The greatest thing anyone can ever do for an individual with a physical or cognitive disability is to cultivate and celebrate their strengths, and challenge them to reach all of their goals, no matter how lofty they may seem. </span><span style="font-size: large;">We know Jack can do <em>anything</em> he wants to do. He just may need a little more help and support to do so. </span></div>
<div style="text-align: center;">
<br /></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5mtt9mcwhGkampMB_4ClLrMNevyl-Nyniqy_eYxKtqfS7yScrG7tSp2uq35IfEd6Gv0wG_rGMI0j5B-S83NXRbS2rrQ2yRVGARg92wH_ODtLt8FgoRSZeiIbFJ7atUvn_zUmPRJyJnFg/s1600/JACKERS+closeup.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5mtt9mcwhGkampMB_4ClLrMNevyl-Nyniqy_eYxKtqfS7yScrG7tSp2uq35IfEd6Gv0wG_rGMI0j5B-S83NXRbS2rrQ2yRVGARg92wH_ODtLt8FgoRSZeiIbFJ7atUvn_zUmPRJyJnFg/s320/JACKERS+closeup.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><em>"I would never underestimate you. </em></span><br />
<span style="font-size: large;"><em>Can you return the favor?"</em></span></td></tr>
</tbody></table>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com1tag:blogger.com,1999:blog-718395149887179906.post-52873063461581810382012-10-10T10:27:00.000-07:002012-10-10T10:30:12.559-07:0031 for 21: DAY 10 :: Inclusion and Moving Forward<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">We recently dealt with some issues at Jack's preschool that I have not yet shared with everyone. I really don't want to get into it all the details in such a public arena, but I will tell you that we have taken Jack out of the preschool he started in the beginning of September. We did this for many reasons, one being his separation anxiety and difficulty adjusting to the classroom, but mostly because we simply felt that the school was not right for Jack. We plan to give Jack a break from school for a while, in hopes that he forgets about his negative experiences there (he was very unhappy there and would cry nonstop, which broke everyone's hearts). We are going to take our time over the next couple of months to explore other options and find the place where Jack can most succeed. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">The entire experience made me wonder more about<em> </em><strong>inclusion</strong>, and what it means for a program to truly be "inclusive". It definitely means more than just <em>saying </em>your program is "inclusive", that's for sure.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #10:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong><em><span style="font-size: x-large;">Children with Down syndrome today are included in regular academic classrooms across the country. Students with Ds may be integrated into specific courses or fully included in the regular classroom for all subjects.</span></em></strong> </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">When speaking with a friend about our recent preschool experience, she asked me, <em>"What exactly is inclusion?"</em> So, I thought I would take a moment to explain. <strong> Inclusion</strong> is a philosophy of education based on the belief in every person’s inherent right to fully participate in society. It implies acceptance of differences and access to the educational experiences that are fundamental to every student’s development. </span><span style="font-size: large;">When <em>effectively </em>implemented, research has demonstrated academic and social benefits for all students - both those who have special needs as well as typical students. Friendships develop, typically-developing students are more appreciative of differences and students with disabilities are more motivated. True acceptance of diversity will ultimately develop within the school environment and is then carried into the home, workplace, and community. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Whereas taking Jack out of preschool was not the ideal situation, we absolutely had to do what was BEST for our son. The school was simply not the right place for our Jack. It was definitely one of the more difficult things I have had to do since Jack was born, but it certainly taught me a lot about the world as others see it and more than I already knew about the world from the eyes of mom with an exceptional child. Like many lessons in life, I was reminded that there will always be things in the world we are unable to change, no matter how hard we try. So, rather than dwell on our negative experiences, we are going to use this as an opportunity to learn and move forward, on to more positive places in our life. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><em><strong>Wish us luck!!!</strong></em></span></div>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_ql7DmgvZCMhuPnMlJUDcLCJHjH4SXGZyjC75cBP0VZNu0jV_4SXXuRXqtdeHDyKZmwqhNrJ29iXXULJDkKJGjUv_nMgLoWtq0_POuewyvj60LSn4rPOMpNBJpK1sivMbNENWi9sqZXw/s1600/First+Day+of+Preschool+and+Beach+Trip+September+2012+143.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><span style="font-size: large;"><em><img border="0" height="239" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_ql7DmgvZCMhuPnMlJUDcLCJHjH4SXGZyjC75cBP0VZNu0jV_4SXXuRXqtdeHDyKZmwqhNrJ29iXXULJDkKJGjUv_nMgLoWtq0_POuewyvj60LSn4rPOMpNBJpK1sivMbNENWi9sqZXw/s320/First+Day+of+Preschool+and+Beach+Trip+September+2012+143.jpg" width="320" /></em></span></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><span style="font-size: large;"><em>Looking forward to new beginnings!</em></span></td></tr>
</tbody></table>
<div style="text-align: center;">
<br /></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-9278623814320145842012-10-09T12:30:00.001-07:002012-10-09T12:39:42.431-07:0031 for 21: DAY 9 :: The Dreaded "R word" (again)<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">I am sure you all have heard this before, and are probably tired of me beating a dead horse by now, but sadly I must write about it once again. </span></div>
<div style="text-align: center;">
<span style="font-size: large;">Yep, it ... the R WORD.</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">You see, it seems that no matter how many times I rant about how hurtful the word "retarded" can be to me, to my son, and to my family and friends; no matter how many celebrities have to publicly apologize for "accidentally" saying it in interviews; no matter how many times critics slay filmmakers for using the word in their movies; there will always be individuals in this world who just plain don't get it. </span></div>
<div style="text-align: center;">
<span style="font-size: large;"><em>(Either that, or they are just plain mean and heartless.) </em></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">I don't think I need to go into my </span><a href="http://www.johnrhickling.blogspot.com/2012/03/end-word.html"><span style="font-size: large;">whole spiel</span></a><span style="font-size: large;"> again about my thoughts on THE WORD, because I am sure most of you loyal followers know exactly how I feel about it, and I am sure most of you share my sentiment on the topic. However, I must get something off my shoulders. </span></div>
<div style="text-align: center;">
<br />
<span style="font-size: large;">Thanks to Ann Coulter, my topic for today's Down Syndrome Awareness Month blog was very easy to contrive! Yes, my friends, the lovely Ann Coulter, conservative political commentator, just couldn't help herself and tweeted the following recently:</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"> <em>"Been busy, but is Obama STILL talking about that video? I had no idea how crucial the <u>retarded</u> vote is in this election.”</em></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Really?!?! Yes, really ... she did it, friends. She threw out the R word right then and there, without ANY caution or hesitation. Now, I know that she gains her popularlity by being inappropriate and always crossing the line, but when exactly did being just plain hurtful and heartless become acceptable?!?!</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">I WILL refrain from getting into my political views on a public forum. I believe the true issue here evades politics altogether. No matter what side of the political aisle you sit on, using the R word in an intentionally derogatory way is NOT acceptable!</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">What I will NOT refrain from, however, is doing something about this. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">I encourage you to read</span><a href="http://moms.today.com/_news/2012/10/09/14301189-dad-demands-apology-from-ann-coulter-for-using-retarded-as-an-insult"><span style="font-size: large;"> this wonderfully written article</span></a><span style="font-size: large;"> by Dan Niblock, a father who lives in Durham and has a son with Down syndrome. He is demanding an apology from Ann Coulter, and I encourage you to join him, me and other moms out there in spreading the word about her inappropriate and hurtful words. </span></div>
<div style="text-align: center;">
<br />
<span style="font-size: large;">Oh, and in case you didn't know, because the term was being so misused by our society, the term "mental retardation" has even been replaced in the medical community with the word "intellectual disability." This was done in an effort to help thwart the derogatory nature of the R word that our society has imposed over years of misuse. So, if doctors aren't even using the word now, why should we?!?!?</span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #9:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<strong><span style="font-size: x-large;"><em>On October 5, 2010, U.S. President Barack Obama officially signed bill S. 2781 into federal law. This bill called "Rosa’s Law" (which takes its name and inspiration for 9-year-old Rosa Marcellino) removes the terms “mental retardation” and "mentally retarded" from federal health, education and labor policy and replaces them with people first language “individual with an intellectual disability” and “intellectual disability.” The signing of Rosa’s Law is a significant milestone in establishing dignity, inclusion and respect for all people with intellectual disabilities. </em></span></strong></div>
<div style="text-align: center;">
<span style="font-size: large;"></span></div>
<span style="font-size: large;"><div style="text-align: center;">
<br /></div>
</span><br />
<div style="text-align: center;">
<span style="font-size: large;"></span></div>
<span style="font-size: large;"><div style="text-align: center;">
<br /></div>
</span></div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0tag:blogger.com,1999:blog-718395149887179906.post-28564534120721106222012-10-08T18:36:00.000-07:002012-10-08T18:37:32.500-07:0031 for 21: DAY 8 :: "Times they are a changin"<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-size: large;">Times are changing. Because of advances in technology and medicine, individuals with Down syndrome (in addition to many other genetic disorders) now live longer, healthier, and fuller lives. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;"><strong>Down Syndrome Fact of the Day #8:</strong></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<em><strong><span style="font-size: x-large;">As many as 80 percent of adults with Down syndrome live to age 65, and many live longer.</span></strong></em></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">The truth is, however, we never know how long <em>any </em>of us will live. Something could happen tomorrow and change everything. My father didn't have Down syndrome, but he did have cancer, and it took his life at the early age of 54. </span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-size: large;">Given that the life expectancy for the average male is currently around 76 (<em>I think</em>), age 65 does seem a little young. But, I refuse to dwell on this part of the equation. I dwell on the fact that medicine and technology continue to advance, and that my boy will have more chances than ever to prosper in the coming years. I dwell on the fact that I, like anyone, should relish every single day we have with our loved ones. I believe that there is a reason we are all put here on this Earth, and I especially believe that about my dear son Jack. Big things are coming in your lifetime, my sweet boy, I just know it!</span></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-e-I12GLHtriaEogQVfBtv8Air9sq8b7GuigjFXFxEvQ9_kssH3R4H7OuwlV2nHcF2gW4rFW4_kv3fttAM2iZvGtyRsSsL2Yl43pnJqpKRAKLt99kfY3u5L78rqM6GqSB2YLg59L6BaY/s1600/Little+Hero.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" nea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-e-I12GLHtriaEogQVfBtv8Air9sq8b7GuigjFXFxEvQ9_kssH3R4H7OuwlV2nHcF2gW4rFW4_kv3fttAM2iZvGtyRsSsL2Yl43pnJqpKRAKLt99kfY3u5L78rqM6GqSB2YLg59L6BaY/s320/Little+Hero.jpg" width="258" /></a></div>
<div align="center">
<span style="font-size: large;"><em>You will always be my HERO, at any age!</em></span></div>
</div>
Korey Hickling (Jack's mom)http://www.blogger.com/profile/07264713678980895968noreply@blogger.com0